What Is Achondroplasia? Resources + Tools
MyAchonJournery website
    • Managing your child’s diagnosisAchondroplasia diagnosis, sharing the news, and finding support.
    • Planning for baby’s arrivalBuilding your healthcare team and creating a birth plan.
    • First days with babySupport for newborn care, home adaptations, and health monitoring.
    • Medical ManagementAchondroplasia diagnosis, potential medical needs, and pediatric visit checklist.
    • Growth and developmentMobility support, adaptations, and achondroplasia growth charts.
    • Daily lifeHome and daycare adaptations, feeding considerations, and advocating for your child.
    • Medical ManagementPotential medical needs and a printable medical visit checklist.
    • Growth and DevelopmentMobility support and adaptations and achondroplasia growth charts.
    • Daily lifeHome and school adaptations, sports and activities, and talking about achondroplasia.
    • Health and WellnessHealth impacts, anesthesia safety, and healthy weight management.
    • Social, Emotional, and Mental HealthInclusion, identity, confidence, and body positivity.
    • Daily lifeClothing adaptations, school support, sports and activities, and emergency planning.
    • Health and WellnessHealth impacts, puberty, and healthy weight management.
    • Social, Emotional, and Mental HealthFriendships and dating, communication, and supporting mental health.
    • Daily lifeClothing adaptations, sports and activities, and driving modifications.
    • Managing your child’s diagnosisAchondroplasia diagnosis, sharing the news, and finding support.
    • Planning for baby’s arrivalBuilding your healthcare team and creating a birth plan.
    • First days with babySupport for newborn care, home adaptations, and health monitoring.
    • Medical ManagementAchondroplasia diagnosis, potential medical needs, and pediatric visit checklist.
    • Growth and developmentMobility support, adaptations, and achondroplasia growth charts.
    • Daily lifeHome and daycare adaptations, feeding considerations, and advocating for your child.
    • Medical ManagementPotential medical needs and a printable medical visit checklist.
    • Growth and DevelopmentMobility support and adaptations and achondroplasia growth charts.
    • Daily lifeHome and school adaptations, sports and activities, and talking about achondroplasia.
    • Health and WellnessHealth impacts, anesthesia safety, and healthy weight management.
    • Social, Emotional, and Mental HealthInclusion, identity, confidence, and body positivity.
    • Daily lifeClothing adaptations, school support, sports and activities, and emergency planning.
    • Health and WellnessHealth impacts, puberty, and healthy weight management.
    • Social, Emotional, and Mental HealthFriendships and dating, communication, and supporting mental health.
    • Daily lifeClothing adaptations, sports and activities, and driving modifications.
What Is Achondroplasia? Resources + Tools

This website is intended for parents and caregivers of children with achondroplasia. You may choose to share the information with your child as you see fit.


MyAchonJournery website
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